Enjoying being loved on by Grandma and Great Grandma. Chloe loves hammocks and even little Brother joined her for awhile to "play"! |
These pictures are priceless, aren't they? Noah with his great grandma, Ruth! |
My husband has Sickle Cell Anemia, which if you don't know what that is, here it is in a nutshell (aka laymen's terms!). SCA is a genetic blood disease, which during a crisis causes tremendous pain, mostly focused in the torso area of the body. The blood cells become "sickle" shaped (hence the name), clumping together in the blood vessel, which causes the pain, yellow eyes, brown colored urine and physical exhaustion. A crisis can be brought on by trauma to the body in the form of rapid weather change, especially temperature changes of warm to cold, accident or injury. The cold weather that sweeps through our city in a heartbeat is always an invitation for my husband to either feel yucky or downright ill. It is a disease that is a part of our lives everyday but rarely leaves him hospitalized like this week. If it gets enough out of control, blood transfusions are on the menu, but he has not had one since 2003. For the most part he controls it with immense water intake and avoiding being in the cold very long. However, this week it is not so much under control and so he is in the hospital for the second time in one week.
I know there are so many people with so many struggles, many much more intense than ours. So tonight, I am just grateful that he will be fine and someday soon we will be reunited as a family. A healthy family, Lord willing! Chloe continues to cough but is improving. Should be since she is on her second round of antibiotics in one month. Inhalation treatments still mark our days but I am so glad to see slow improvement. Noah is an angel child: drank formula for the first time this week while mommy was at the hospital...from a syringe! He brings us untold joy and smiles. He just goes with the flow and keeps getting chubbier and chubbier. He is weighing in at over 13 lb now, is 2 months old and laughs outloud. Those are his accomplishments for the month of November!!!
And I...well, I am tired! I am trusting that tomorrow will bring a fresh measure of grace and strength. It always does. I sang "Because He Lives" to my children tonight when I tucked them into bed. Truly, because He Lives, we can face tomorrow, because he lives, all fear is gone!
Good night, sweet dreams and rich blessings,
JAMA
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